Research on Anxiety Levels of Parents with Children Diagnosed with Williams Syndrome

Hakan Coşkun; Amine Güntay; Yakuphan Güleç; Ömer Eviz; Ümit Ç:ıvak; Ayşe Korkmazyürek Küçükdemir; Ercem Erkul

Article Details

Research on Anxiety Levels of Parents with Children Diagnosed with Williams Syndrome

Authors:

Hakan Coşkun | Amine Güntay | Yakuphan Güleç | Ömer Eviz | Ümit Ç:ıvak | Ayşe Korkmazyürek Küçükdemir | Ercem Erkul

Publisher:

Hacettepe University

Main Topics:

Sosyoloji (Diğer)

Journal:

Toplum ve Sosyal Hizmet Vol.35 Issue 1, pp.87-112

Document Type:

Article

Publication Date:

1/2024

Document Language:

Turkish

Document ID (Org No.):

2001310933

pISSN:

2147-3374

Keywords:

Abstract:

 Williams-Beuren Syndrome WS is a multiple systemic chromosome disorder that was identified by John Cyprian Phipps Williams in 1961 and is caused by the deletion of the seventh pair of chromosome pairs. Since children diagnosed with WS are individuals with special needs, it may cause anxiety in parents due to factors such as the fact that children are always dependent on their parents and their social lives are limited. In this context, the aim of this study is to investigate the anxiety levels of parents with children diagnosed with WS in Turkey due to the difficulties they experience. A total of 118 parents with children diagnosed with WS and registered with the Williams Syndrome Association of Turkey TWSD participated in the study, which was conducted using a survey model. Data were collected through socio-demographic questions created by the researchers and Beck Anxiety Inventory BAI developed by Beck, Epstein, Brown ve Steer 1988. In the analysis of the data, Pearson correlation test, Independent Sample t Test and One-Way Analysis of Variance were used as parametric tests since the data came from a normal distribution. As a result of the findings, it was observed that the marital status, employment status, the number of children, the number of children in the family, the number of children diagnosed with WS, blaming themselves for the child being diagnosed with WS, and finally, the anxiety about who will take care of the child in their absence significantly affected the anxiety levels of the parents. It is recommended to work more intensively and effectively with parents with children diagnosed with WS and to develop micro, mezzo and macro social service practices for children diagnosed with WS.

 Williams-Beuren Syndrome WS is a multiple systemic chromosome disorder that was identified by John Cyprian Phipps Williams in 1961 and is caused by the deletion of the seventh pair of chromosome pairs. Since children diagnosed with WS are individuals with special needs, it may cause anxiety in parents due to factors such as the fact that children are always dependent on their parents and their social lives are limited. In this context, the aim of this study is to investigate the anxiety levels of parents with children diagnosed with WS in Turkey due to the difficulties they experience. A total of 118 parents with children diagnosed with WS and registered with the Williams Syndrome Association of Turkey TWSD participated in the study, which was conducted using a survey model. Data were collected through socio-demographic questions created by the researchers and Beck Anxiety Inventory BAI developed by Beck, Epstein, Brown ve Steer 1988. In the analysis of the data, Pearson correlation test, Independent Sample t Test and One-Way Analysis of Variance were used as parametric tests since the data came from a normal distribution. As a result of the findings, it was observed that the marital status, employment status, the number of children, the number of children in the family, the number of children diagnosed with WS, blaming themselves for the child being diagnosed with WS, and finally, the anxiety about who will take care of the child in their absence significantly affected the anxiety levels of the parents. It is recommended to work more intensively and effectively with parents with children diagnosed with WS and to develop micro, mezzo and macro social service practices for children diagnosed with WS.

 Williams-Beuren Syndrome WS is a multiple systemic chromosome disorder that was identified by John Cyprian Phipps Williams in 1961 and is caused by the deletion of the seventh pair of chromosome pairs. Since children diagnosed with WS are individuals with special needs, it may cause anxiety in parents due to factors such as the fact that children are always dependent on their parents and their social lives are limited. In this context, the aim of this study is to investigate the anxiety levels of parents with children diagnosed with WS in Turkey due to the difficulties they experience. A total of 118 parents with children diagnosed with WS and registered with the Williams Syndrome Association of Turkey TWSD participated in the study, which was conducted using a survey model. Data were collected through socio-demographic questions created by the researchers and Beck Anxiety Inventory BAI developed by Beck, Epstein, Brown ve Steer 1988. In the analysis of the data, Pearson correlation test, Independent Sample t Test and One-Way Analysis of Variance were used as parametric tests since the data came from a normal distribution. As a result of the findings, it was observed that the marital status, employment status, the number of children, the number of children in the family, the number of children diagnosed with WS, blaming themselves for the child being diagnosed with WS, and finally, the anxiety about who will take care of the child in their absence significantly affected the anxiety levels of the parents. It is recommended to work more intensively and effectively with parents with children diagnosed with WS and to develop micro, mezzo and macro social service practices for children diagnosed with WS.

 Williams-Beuren Sendromu WS 1961 yılında John Cyprian Phipps Williams tarafından tespit edilen ve kromozom çiftlerinden yedinci çiftin silinmesi sonucunda ortaya çıkan çoklu sistemik bir kromozom bozukluğudur. WS tanısı almış çocuklar özel gereksinimli bireyler olduğundan dolayı çocukların ebeveynlerine daima bağımlı olması, sosyal hayatlarının sınırlı olması vb. etkenler nedeniyle ebeveynlerde anksiyeteye sebep olabilmektedir. Bu bağlamda çalışmanın amacı Türkiyede WS tanısı almış çocuğa sahip olan ebeveynlerin yaşadıkları güçlüklerden ötürü oluşan anksiyete düzeylerinin araştırılmasıdır. Tarama modeliyle gerçekleştirilen araştırmaya WS tanısı almış çocuğa sahip Türkiye Williams Sendromlular Derneğine TWSD kayıtlı 118 ebeveyn katılmıştır. Veriler, araştırmacılar tarafından oluşturulan sosyo-demografik sorular ve Beck, Epstein, Brown ve Steer 1988 tarafından geliştirilen Beck Anksiyete Envanteri BAE aracılığıyla toplanmıştır. Verilerin analizinde ise, veriler normal dağılımdan geldiği için parametrik testlerden Pearson korelasyon testi, Bağımsız Örneklem t Testi ve Tek Yönlü Varyans Analizi kullanılmıştır. Elde edilen bulgular neticesinde ebeveynlerin medeni durumunun, çalışma durumunun, sahip olduğu çocuk sayısının, WS tanısı almış çocuğun ailenin kaçıncı çocuğu olduğunun, çocuğun WS tanılı olmasından dolayı kendilerini suçlamalarının ve son olarak kendileri olmadığında çocuğun bakımını kimin üstleneceği konusunda yaşadıkları kaygının anksiyete düzeylerini anlamlı bir şekilde etkilediği gözlemlenmiştir. WS tanısı almış çocuğa sahip ebeveynlerle daha yoğun ve etkin bir biçimde çalışılması ve WS tanısı almış çocuklara yönelik mikro, mezzo ve makro sosyal hizmet uygulamaları geliştirilmesi önerilmektedir.

Article Details

Research on Anxiety Levels of Parents with Children Diagnosed with Williams Syndrome

Authors:

Hakan Coşkun | Amine Güntay | Yakuphan Güleç | Ömer Eviz | Ümit Ç:ıvak | Ayşe Korkmazyürek Küçükdemir | Ercem Erkul

Publisher:

Hacettepe University

Main Topics:

Sosyoloji (Diğer)

Journal:

Toplum ve Sosyal Hizmet Vol.35 Issue 1, pp.87-112

Document Type:

Article

Publication Date:

1/2024

Document Language:

Turkish

Document ID (Org No.):

2001310933

pISSN:

2147-3374

Williams Syndrome

Anxiety

Parent

Care Givers

Social Service

Social WorkWilliams Sendromu

Anksiyete

Ebeveyn

Bakım Verenler

Sosyal Hizmet

Sosyal çalışma

Issues

Article Details

Authors: Hakan Coşkun | Amine Güntay | Yakuphan Güleç | Ömer Eviz | Ümit Ç:ıvak | Ayşe Korkmazyürek Küçükdemir | Ercem Erkul

Publisher: Hacettepe University

Main Topics: Sosyoloji (Diğer)

Journal: Toplum ve Sosyal Hizmet Vol.35 Issue 1, pp.87-112

Document Type: Article

Publication Date: 1/2024

Document Language: Turkish

Document ID (Org No.): 2001310933

pISSN: 2147-3374

Issues

Authors:

Hakan Coşkun | Amine Güntay | Yakuphan Güleç | Ömer Eviz | Ümit Ç:ıvak | Ayşe Korkmazyürek Küçükdemir | Ercem Erkul

Publisher:

Hacettepe University

Main Topics:

Sosyoloji (Diğer)

Journal:

Toplum ve Sosyal Hizmet Vol.35 Issue 1, pp.87-112

Document Type:

Article

Publication Date:

1/2024

Document Language:

Turkish

Document ID (Org No.):

2001310933

pISSN:

2147-3374