The Quality of Life in Children with Congenital Heart Disease Who Underwent an Intervention

Havva Yazıcı; Timur Meşe

Article Details

The Quality of Life in Children with Congenital Heart Disease Who Underwent an Intervention

Authors:

Havva Yazıcı | Timur Meşe

Publisher:

Mugla Sitki Kocman University

Main Topics:

Klinik Tıp Bilimleri (Diğer)

Journal:

Muğla Sıtkı Koçman Üniversitesi Tıp Dergisi Vol.11 Issue 2, pp.125-131

Document Type:

Article

Publication Date:

8/2024

Document Language:

Turkish

Document ID (Org No.):

2001325374

pISSN:

2148-8118

Keywords:

Abstract:

 Congenital heart disease CHD is one of the most common chronic pediatric conditions, exerting a substantial impact on the lives of children and families. The assessment of childrens quality of life gained prominence in the 1980s and is now widely used in clinical practice for comparing treatment options and evaluating their efficacy. We applied the Congenital Heart Disease Quality of Life ConQol questionnaire, age-appropriate and disease-specific, to 52 children aged 816 years with CHD who underwent intervention at the Pediatric Cardiology Unit of Dr. Behcet Uz Childrens Diseases and Surgery Training and Research Hospital. A control group of 52 healthy individuals without CHD was also included. The 811 age group consisted of 27 patients and 26 healthy controls. There were 25 patients and 26 healthy controls in the 1216 age group. There were significant differences in specific areas such as being able to run about, being allowed to do sports and exercise, and being able to do keep up with friends in 811-year-old patient group compared to the control group. The ConQol Index Score was statistically significantly different between 1216-year-old patient and control groups, about being allowed to do sports and exercise, being able to do keep up with friends, and being able to take part in clubs  do activities outside of school. Our findings underscore the impact of CHD on the quality of life in children with CHD, particularly manifesting in reduced physical activity.

 Congenital heart disease CHD is one of the most common chronic pediatric conditions, exerting a substantial impact on the lives of children and families. The assessment of childrens quality of life gained prominence in the 1980s and is now widely used in clinical practice for comparing treatment options and evaluating their efficacy. We applied the Congenital Heart Disease Quality of Life ConQol questionnaire, age-appropriate and disease-specific, to 52 children aged 816 years with CHD who underwent intervention at the Pediatric Cardiology Unit of Dr. Behcet Uz Childrens Diseases and Surgery Training and Research Hospital. A control group of 52 healthy individuals without CHD was also included. The 811 age group consisted of 27 patients and 26 healthy controls. There were 25 patients and 26 healthy controls in the 1216 age group. There were significant differences in specific areas such as being able to run about, being allowed to do sports and exercise, and being able to do keep up with friends in 811-year-old patient group compared to the control group. The ConQol Index Score was statistically significantly different between 1216-year-old patient and control groups, about being allowed to do sports and exercise, being able to do keep up with friends, and being able to take part in clubs  do activities outside of school. Our findings underscore the impact of CHD on the quality of life in children with CHD, particularly manifesting in reduced physical activity.

 Congenital heart disease CHD is one of the most common chronic pediatric conditions, exerting a substantial impact on the lives of children and families. The assessment of childrens quality of life gained prominence in the 1980s and is now widely used in clinical practice for comparing treatment options and evaluating their efficacy. We applied the Congenital Heart Disease Quality of Life ConQol questionnaire, age-appropriate and disease-specific, to 52 children aged 816 years with CHD who underwent intervention at the Pediatric Cardiology Unit of Dr. Behcet Uz Childrens Diseases and Surgery Training and Research Hospital. A control group of 52 healthy individuals without CHD was also included. The 811 age group consisted of 27 patients and 26 healthy controls. There were 25 patients and 26 healthy controls in the 1216 age group. There were significant differences in specific areas such as being able to run about, being allowed to do sports and exercise, and being able to do keep up with friends in 811-year-old patient group compared to the control group. The ConQol Index Score was statistically significantly different between 1216-year-old patient and control groups, about being allowed to do sports and exercise, being able to do keep up with friends, and being able to take part in clubs  do activities outside of school. Our findings underscore the impact of CHD on the quality of life in children with CHD, particularly manifesting in reduced physical activity.

 Konjenital kalp hastalıkları çocukların ve ailelerin hayatlarını etkileyen en yaygın kronik çocukluk çağı hastalıklarından birisidir. Çocukların hayat kalitesinin değerlendirilmesi 1980lerde kullanılmaya başlanmış olup son zamanlarda tedavi seçeneklerinin karşılaştırılmasında ve etkinliklerinin değerlendirilmesinde ve klinik uygulamada yaygın olarak kullanılmaktadır. Çalışmamızda Dr. Behçet Uz Çocuk Sağlığı ve Hastalıkları Eğitim ve Araştırma Hastanesi Çocuk Kardiyoloji Biriminde konjenital kalp hastalığı tanılı ve girişim uygulanmış olan 8-16 yaşları arasındaki 52 hastaya yaş grubuna özgü ve sağlıkla ilgili yaşam kalitesi ölçeği olan Konjenital Kalp Hastalıkları Yaşam Kalitesi ConQol anketi uygulanmıştır. 8-11 yaş grubu 27 hasta ve 26 sağlıklı kontrolden oluşuyordu. 12-16 yaş grubunda 25 hasta ve 26 sağlıklı kontrol vardı. 811 yaş grubunda koşuşturabilme, spor ve egzersiz yapılmasına izin verilmesi ve arkadaşlara ayak uydurabilme sorularında kontrol grubuna göre anlamlı bir fark olduğu saptanmıştır. 1216 yaş grubunda spor ve egzersiz yapılmasına izin verilmesi, arkadaşlara ayak uydurabilme ve kulübe gitme veya okul dışında aktivitelere katılma sorularında kontrol grubuna göre anlamlı bir fark olduğu saptanmıştır. Konjenital kalp hastalıklı çocuklarda yaşam kalitesi özellikle fiziksel aktivite kısıtlanmasından etkilenmektedir.

Article Details

The Quality of Life in Children with Congenital Heart Disease Who Underwent an Intervention

Authors:

Havva Yazıcı | Timur Meşe

Publisher:

Mugla Sitki Kocman University

Main Topics:

Klinik Tıp Bilimleri (Diğer)

Journal:

Muğla Sıtkı Koçman Üniversitesi Tıp Dergisi Vol.11 Issue 2, pp.125-131

Document Type:

Article

Publication Date:

8/2024

Document Language:

Turkish

Document ID (Org No.):

2001325374

pISSN:

2148-8118

Child

ConQol

Congenital Heart Disease

Quality of LifeÇocuk

ConQol

Konjenital Kalp Hastalığı

Yaşam Kalitesi

Issues

Article Details

Authors: Havva Yazıcı | Timur Meşe

Publisher: Mugla Sitki Kocman University

Main Topics: Klinik Tıp Bilimleri (Diğer)

Journal: Muğla Sıtkı Koçman Üniversitesi Tıp Dergisi Vol.11 Issue 2, pp.125-131

Document Type: Article

Publication Date: 8/2024

Document Language: Turkish

Document ID (Org No.): 2001325374

pISSN: 2148-8118

Issues

Authors:

Havva Yazıcı | Timur Meşe

Publisher:

Mugla Sitki Kocman University

Main Topics:

Klinik Tıp Bilimleri (Diğer)

Journal:

Muğla Sıtkı Koçman Üniversitesi Tıp Dergisi Vol.11 Issue 2, pp.125-131

Document Type:

Article

Publication Date:

8/2024

Document Language:

Turkish

Document ID (Org No.):

2001325374

pISSN:

2148-8118